Epilepsy: IT’S NOT JUST SEIZURES™

The Seizure Tracker "IT’S NOT JUST SEIZURES™" (INJS) initiative focuses on building tools to help manage all aspects of living with seizures.

As a community, we know that seizures and related therapies can impact our lives in many ways. Help us build tools to manage all aspects of your quality of life, not just seizures. Seizure Tracker is following standard guidelines for developing a common list of issues or Core Outcome Set for people with living with seizures. Our goal is to leverage this list in providing you a way to understand the impact epilepsy has on you and your family as a whole.

WHAT IS A CORE OUTCOME SET?

A core outcome set (COS) is an agreed-upon, standardized list of quality-of-life issues our community agrees epilepsy doctors should ask about in clinic/hospital visits when seeing a person living with epilepsy.

Seizure Tracker® "IT'S NOT JUST SEIZURES™" initiative stages:

• Identify factors (other than seizures) that impact quality of life.
• Prioritize these factors and understand how priorities change among different subgroups within the epilepsy population.
• Make the prioritized list public so we can better understand the full impact of epilepsy on individuals and families.
• Build tools to help manage epilepsy more holistically.

The current quality of life items list was developed through group discussions and past surveys with patients and care providers dealing with a broad spectrum of issues related to epilepsy. With your help, we will continue the effort to prioritize the items according to how they impact you!