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Keeping user information safe and private!

Keeping user information safe and private has been a concern for us since we started building SeizureTracker.com.

We have implemented multiple tools on the site to ensure the security of our users' data. Some of those tools include a user id and password log in system, encryption on all user account data transfers and a randomized unique identifier for data entries.

Seizure Tracker data will not be intentionally shared without removing identifying information (unless the user specifies otherwise).

Seizure Tracker Data For Research

Seizure Tracker is the largest collection of patient entered seizure event and treatment information in the world. We realize the data collected through the tools available to our user base could have a great impact on the understanding of seizures and epilepsy.

After circulating the "Help us understand your interest in epilepsy research" survey in February of 2014 we realized Seizure Tracker users had a strong interest in furthering epilepsy research through sharing their anonymized seizure diary data. We took that as a mandate to build tools into Seizure Tracker that would give our users the capability to easily participate (or not participate) in epilepsy research.

We will periodically export de-identified population data from the Seizure Tracker database for research purposes. All data points that have the potential to identify the user will be removed prior to these exports.

Seizure Tracker users have the option to opt-out of these exports.

Visit the help section to see how.

The Seizure Tracker Data Share Tool allows website users to link their Seizure Tracker account data to partner data bases. The data share partnerships will be set up with epilepsy community organizations that share the Seizure Tracker goal of furthering epilepsy research and improving the lives of those living with seizures.

Visit the Seizure Tracker help section to learn more about the data share tool.

Privacy Policy

Please read this Privacy Policy carefully before using www.SeizureTracker.com or any associated mobile and voice applications (the "service") operated by Seizure Tracker LLC ("us", "we", "our").
Privacy Policy Modifications
We reserve the right to modify this Privacy Policy at any time without notice to you.
Conditions of Use
We will provide these services to you, which are subject to the conditions stated below in this document. Every time you visit this website, use its services, you accept the following conditions.
Information We Collect
SeizureTracker.com and the associated tools collect personal information on the subject individual and the system user interaction.
This data includes:
Personal profile information entered by the user
Device/personal computer specific information (device model and operating system)
Emails of user and emails entered by user for the purpose of sharing data from the system
Geo Location (when enabled by user)
User IP address
Cookie information (placed by us at log in only)
How We Use Your Data
By using, accessing and inputting information in the App, you agree that any and all seizure and therapy data (excluding personal information) that you have entered or may enter at a future time, into the App, as well as any data you may enter into related features or Services of the App (which are not present at the moment within the App, but which may be introduced at any time in the future), you consent to the compilation, processing, analyzing as well as anonymous disclosure to a third party. Aggregating anonymized user data allows us to enhance our services through the provision of insights that can not only help users and physicians understand the causes of seizures, but also show how a population responds to lifestyle changes, treatment methods and medications. The main objective of data collection is to assist in personal clinical care, further epilepsy research as well as improve our services.
In lieu of these objectives, the above mentioned compilation, processing, analysis, and anonymous disclosure of data may be conducted with the purpose of:
1) Developing anonymous aggregated reports, analysis, charts, tables, infographics in order to: Work with external researchers to improve algorithms and develop new individualized algorithms meant at improving your experience including "seizure prediction," "activity detection," and "trigger learning," without being limited to those. Compare different epilepsy population groups for our understanding, as well as for communication and awareness of epilepsy. Participate in academic research with a resulting publication. You can still opt-out at any time by logging into your SeizureTracker.com account, visiting the account settings and adjusting the research opt-out option.
2)Developing consequently related new products, services and features which may be used to improve the App or may be sold to you or a third party.
Disclosing Data To A Third Party
Your data may be disclosed to a third party in the following instances:
1) As we develop our business, we might sell or buy businesses or assets. In the event of a sale, merger, reorganization, dissolution or similar event relating to all or a portion of our business or assets, your personal information and data may be part of the transferred assets.
2) We may also disclose your data if required to do so by law or in the good faith belief that such action is necessary to (i) comply with a legal obligation, (ii) protect and defend our rights or property, (iii) act in urgent circumstances to protect the personal safety of users of the Services or the public.
3) Fully anonymized data collection can be included in anonymous & aggregated reports, analysis, charts, tables, info graphics to support research and awareness of epilepsy, more in "How We Use Your Data."
Applicable Law
By visiting this website, you agree that the laws of the Commonwealth of Virginia and county of Fairfax, without regard to principles of conflict laws, will govern these terms of service, or any dispute of any sort that might come between Seizure Tracker LLC and you, or its business partners and associates.
Disputes
Any dispute related in any way to your visit to this website or to products you purchase from us shall be arbitrated by state or federal court of the Commonwealth of Virginia and county of Fairfax and you consent to exclusive jurisdiction and venue of such courts.
License and Site Access
We grant you a limited license to access and make personal use of this website. You are not allowed to download or modify it. This may be done only with written consent from us.
User Account
Primary account managers must be over the age of 18. If you are an owner of an account on this website, you are solely responsible for maintaining the confidentiality of your private user details (username and password). You are responsible for all activities that occur under your account or password.
We reserve all rights to terminate accounts, edit or remove content in their sole discretion.