TS Alliance Webinar

SeizureTracker.com: Your Role in Supporting Research Toward Seizure Prediction and Improving Quality of Life

Do you worry about when your next seizure will happen?

Robert Moss (Co-founder SeizureTracker.com) will discuss the evolution of Seizure Tracker™ and highlight the TSC community’s role in advancing research. Using patient entered data, the Seizure Tracker has been leveraged in the epilepsy research community to explore seizure prediction and forecasting methods. He will also showcase the TSC community’s role in the growth of the Seizure Tracker system along with the impact it has on improving quality of life for people with epilepsy.

Robert is the Co-founder of SeizureTracker.com and a parent of a child with TSC and refractory epilepsy. Seizure Tracker is a web and mobile resource which allows patients and care providers to collect seizure, treatment and lifestyle data and share it with their doctors. Reports from SeizureTracker.com visualize whether and how epilepsy therapies have an impact on seizures. Since it was founded in 2007, Seizure Tracker has grown to be the largest collection of patient-reported seizure activity in the world.

Join the free webinar:

• When: Wednesday, April 25 8 pm Eastern (7 pm Central, 6 pm Mountain, 5 pm Pacific) for one hour
• To Participate: go to https://zoom.us/j/557832783 or call 408-638-0968 and enter meeting ID 5578-3278-3

Don't miss out on the opportunity to learn more about seizure prediction/forecasting and chatting directly with Robert Moss about the future of Seizure Tracker. A recording of the webinar will also be provided shortly after the event. Revisit this page for a link to that resource.

Seizure Tracker^® provides graphs of event activity to help you identify trends or patterns in your seizures.

Visit the Seizure Tracker^® help section here.

With your help, we will continue to improve upon the data evaluation tools on Seizure Tracker^®. Feel free to email us at support@seizuretracker.com with questions or feedback.

Did you know...
Seizure Tracker is the largest data base of patient entered seizure activity and surrounding therapies in world (over 1.7 million events recorded). Seizure Tracker users are helping unlock the mysteries of seizure progression, how seizures present in different subgroups, clinical trial optimization, therapy efficacy, non-invasive seizure forecasting/prediction methods, etc.. See the resulting research here.

• A majority of the retrospective research being done through the Seizure Tracker population export tools has been facilitated through a collaboration with the International Seizure Diary Consortium (ISDC).
• Seizure Tracker users can easily opt-out of the de-identified and unlinked population exports for research by visiting their account settings. See how here!