Featured Resources

Infantile Spasms Awareness
Infantile Spasms (IS) are a catastrophic form of epilepsy that often causes severe intellectual disabilities. Early diagnosis and accurate treatments are critical to stopping the abnormal brainwave patterns (Hypsarrhythmia) associated with IS. Your help in educating the public and health care providers about Infantile Spasms is crucial in minimizing the impact.

Genetics in Epilepsy
Knowing the genetic basis of your epilepsy is valuable for obtaining a diagnosis, estimating prognosis, determining risks, and guiding treatment choices. Finding the genes that cause epilepsy could help us find cures faster because of the information that could be learned about the condition. Through genetic testing you may learn more about the cause of your seizures and you may even help advance research.

Seizure Rescue Medications - Community use and preferences
Take this survey and help us understand the use of Seizure Rescue Medications in the epilepsy community. Tell us your preferred way to take rescue medications and see how others in the community feel. You can see the community responses before or after taking the survey.

Tools

Take Control and Build Communication

These tools will empower you to manage your seizures, engage in research and help with communication between you and your care providers.

Become a HERO. Take part in life-changing research.

HERO - Human Epilepsy Research Opportunities
The HERO website provides a clear explanation of clinical research and answer many frequently asked questions. Take a look at the HERO videos, where members of the epilepsy community –both patients and researchers- describe why clinical research is so essential. The initial search using the Trial Finder requires no personal information.

Empowering people living with epilepsy to seek more specialized epilepsy care if they are having seizures, side-effects from drugs, other health problems, or social or educational issues.

My Seizures, Know More
Empowering people living with epilepsy to seek more specialized epilepsy care if they are having seizures, side-effects from drugs, other health problems, or social or educational issues.

In-home Video Seizure Monitoring
In-home video seizure monitoring can be a great way to better understand your seizure activity. Combining network security cameras and a mobile device can provide a simple seizure alerting system as well.

Information

Inform and Empower

This information will help you better understand the therapies available to help control your seizures. It will also give a better idea of your role in in new therapy development.

Infantile Spasms Awareness
Infantile Spasms (IS) are a catastrophic form of epilepsy that often causes severe intellectual disabilities. Early diagnosis and accurate treatments are critical to stopping the abnormal brainwave patterns (Hypsarrhythmia) associated with IS. Your help in educating the public and health care providers about Infantile Spasms is crucial in minimizing the impact.

Genetics in Epilepsy
Knowing the genetic basis of your epilepsy is valuable for obtaining a diagnosis, estimating prognosis, determining risks, and guiding treatment choices. Finding the genes that cause epilepsy could help us find cures faster because of the information that could be learned about the condition. Through genetic testing you may learn more about the cause of your seizures and you may even help advance research.

Vagus Nerve Stimulation (VNS)
VNS Therapy® offers an alternative for long-term seizure control, doesn't add drug-related side effects and may improve your quality of life. VNS Therapy involves a minimally invasive outpatient procedure that is usually covered by your medical insurance and does not involve brain surgery. Did you know there are tools on Seizure Tracker to help you monitor epilepsy therapies, including VNS?

Surveys/Polls

Participate and Communicate

The Seizure Success and You survey and News Tracks polls help you understand how you compare to others in the epilepsy community.

Seizure Rescue Medications - Community use and preferences
Take this survey and help us understand the use of Seizure Rescue Medications in the epilepsy community. Tell us your preferred way to take rescue medications and see how others in the community feel. You can see the community responses before or after taking the survey.

Wearable Seizure Detection and Alerting
Help us understand your interest in wearable seizure detection devices and management. We are interested to know what features would be most valuable to you and what kind price you would be willing and able to pay.

Interest in Research Survey
Thank you to all of you who responded to the "Help us understand your interest in epilepsy research" survey. It is important that we understand your needs and wants prior to making development changes to the Seizure Tracker system. See the results here.

Epilepsy Research in Children
This survey gauges of the epilepsy communities feelings about different aspects of pediactric reseach. You can see the results prior to taking the survey.

Seizure Success® and You!